Making Picking up Fun

So today we are trying to pick up the daycare room (aka toss-all-toys-in-here-on-the-floor-room). Curly Girl was getting bored and decided to don a sword (duct tape + pvc pipe + pool noodle) and a hook (AG doll hanger) and become a captain. I became the one who told Cap'n Pain in the Tush (yes CG liked the name) where to put things....

e.g. - Cap't go to Box House City and get the pricess's dress and deliver it to her closet!

Daddy just told her to clean off the table - she was quite upset - I rephrased it to- "please take all dishes from the table and place them in the gally sink" - so much better for the Cap'n. LOL

A little funny for you...

Today the Wondertwins have decided that their room is off limits to everyone except themselves. The way they announced it was, "Hear Me, Hear Me..."

I just cannot bring myself to correct them LOL.

Unrelated note - I ran my very first 5K yesterday with a time of 37:32. I was thrilled with my time, I wanted to be under 40 minutes.

Also, Friday it seems that I fed Wondertwin A something that is should not have - she has been in pain ever since - poor baby.

A funny for today

Overheard in the playroom - Curly Girl is playing with Barbie and Ken. Barbie is pregnant with twins and is having a home birth. They wanted triplets but sadly only got twins. They had a homebirth because they forgot to buy a phone to call the doctor. LOL

Her imagination is hilarious!

I cannot believe I forgot!

I never posted what was determined at the March GI appointment.

Well the most wonderful, fabulous, amazing news is that Wondertwin A has been OUT OF PAIN since the beginning of March!

After the EGD, the GI doc doubled her Prevacid. This finally allowed the gastritis in her stomach to heal. Once healed, she is no longer in pain. Her wonderul, happy, silly, sometimes naughty, often loud true self has been revealed.

We took her off of Loratadine and she takes Periactin as her antihistimine and appetite stimulant. After 2 weeks on the new meds, and being out of pain, Wondertwin A, for the first time ever broke the 34 pound mark.

When we go back in April, I hope to reduce the prevacid and stop the appetite stimulant. I think she will eat now, because it no longer hurts.

melting my heart...

I was sick this morning, probably a touch of food poisoning. Not so bad that Big Guy had to come home, but sick enough that allowed the Disney Channel Stars (Jonas Bros and Demi Lavato) babysit my children today.

Anyway, while I was sleeping, Curly Girl brought in a newspaper that she made for me (a la Kit Kittredge of the AG stories). Here is the newspaper.

Translation: Mom is sick. Oh, poor Mom. I love Mom. Get well. The End.

I am thinking of counting toward spelling, handwriting, and character development - see I can even homeschool them when I sleep.

Overdue update

Wondertwin A had another endoscopy and an MMI impedence study. Here are her results.

Endoscopy - stomach lining is still swollen and irritated, biopsies do not show EOS. Doc has never given me the numnbers of eos (if any) that he finds. He did say that EGID is still his number one theory about Wondertwin A. He also believes that we had the trigger foods removed before the first reliable EGD was done.

Impedence study showed that her throat clearing, coughing, and other weird throat sound are not related to reflux at all.

He doubled her Prevacid to 60mg daily. These seems like a huge dose for my little girl.

We go back March 11th. Unless she gain quite a bit of weight, we will schedule the ng tube placement at that time. She had lost weight again between the EGD and the day we were there for results.








A picture of all of her loot from the day! Beary3 from the GI staff, Minnie Mouse from Peds, blanket from Project Linus, Curious George from us, and 2 activity books from her sisters.

Gratitude

I have been lacking in gratitude, and happiness, lately. I think part of it has been the weather, or maybe I need happy pills. Either way, I figure maybe being thankful for what I do have will help, and at least it will be a good thing, even if it does not help.

Anyway - here goes - in no particular order!
1 - We leave for Disney in 8 mos and 3 days - and the kids have no idea!
2 - I have 4 wonderful daughters who love to make me laugh.
3 - I have a wonderful husband of 12 years!
4 - God watches over me and He seems to have a lot of faith in what I can handle :)
5 - Anastasia is not as sick as she was one year ago.
6 - We have a great house that keeps us safe and warm.

What now?

Wondertwin A has been having issues again for the last 2 weeks. She is not eating, has tummy pain, throat clearing, and cranky-pants-itis. A call to the GI, and we were seen yesterday. She has gained a pound since Dec (how is that possible? she does not eat!) so there will be no ng tube at this time. We are going to wait and see for 2 weeks to see if the other symptoms go away on their own. If so, great! If no, we will schedule another endoscopy.

Keep praying please!